KOTA KINABALU: Database on Thalassaemia cases had helped the Health ministry to detect and prevent complication among patients.
The national Thalassaemia registry, developed in 2007, had recorded 5,890 cases nationwide with 26 per cent are from Sabah.
The state government itself has also developed i-Thalassaemia to record cases of Thalassaemia carriers which would also be implemented nationwide in near future.
Deputy Health Minister Datuk Seri Dr Hilmi Yahya said the system would give the overall picture of cases distribution in every state in the country.
"We will also be able to evaluate the effectiveness of programme and medical regime based on the lifespan of Thalassaemia patients.
"From that, more research could be done to study the disorder, complications and treatments,'he added.
Meanwhile, Dr Hilmi reiterated that the ministry was aspired to increase awareness and understanding of Thalassaemia among community.
Among the strategic initiatives that had been done by the government include providing blood investigation tools at 345 health clinics in Sabah besides hospitals, RM40 million to bear medication cost for more than 1,000 patients, and health education activities.
Besides that, the minister would also work with Human Resources minister in ensuring job opportunities for Thalassaemia patients.
"We would consider to provide incentives to employers in a bid to accept those group who require to undergo blood transfusion and chelation therapy on monthly basis," he added.
Also present at the programme were organising chairman Professor Datuk Rahman Jamal, State Health Director Dr Christina Rundi, Hospital Likas Women and Children director Dr Tan Bee Hwai and its paediatric head Datuk Dr Soo Thian Lian.
The programme is a platform for Thalassemia patients and families, health personnel and non-professional bodies to share and gain information.
Ends.
The national Thalassaemia registry, developed in 2007, had recorded 5,890 cases nationwide with 26 per cent are from Sabah.
The state government itself has also developed i-Thalassaemia to record cases of Thalassaemia carriers which would also be implemented nationwide in near future.
Deputy Health Minister Datuk Seri Dr Hilmi Yahya said the system would give the overall picture of cases distribution in every state in the country.
"We will also be able to evaluate the effectiveness of programme and medical regime based on the lifespan of Thalassaemia patients.
"From that, more research could be done to study the disorder, complications and treatments,'he added.
Meanwhile, Dr Hilmi reiterated that the ministry was aspired to increase awareness and understanding of Thalassaemia among community.
Among the strategic initiatives that had been done by the government include providing blood investigation tools at 345 health clinics in Sabah besides hospitals, RM40 million to bear medication cost for more than 1,000 patients, and health education activities.
Besides that, the minister would also work with Human Resources minister in ensuring job opportunities for Thalassaemia patients.
"We would consider to provide incentives to employers in a bid to accept those group who require to undergo blood transfusion and chelation therapy on monthly basis," he added.
Also present at the programme were organising chairman Professor Datuk Rahman Jamal, State Health Director Dr Christina Rundi, Hospital Likas Women and Children director Dr Tan Bee Hwai and its paediatric head Datuk Dr Soo Thian Lian.
The programme is a platform for Thalassemia patients and families, health personnel and non-professional bodies to share and gain information.
Ends.
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